Journal article
Perspectives and Experiences with Engaging Youth and Families in Research
Physical & occupational therapy in pediatrics, v 39(3), pp 310-323
04 May 2019
PMID: 30216094
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Engaging youth with disabilities and families in research is critical in facilitating knowledge utilization to impact processes and outcomes of services and interventions. Organizations such as INVOLVE in the United Kingdom, the Canadian Institutes of Health Research and the Patient-Centered Outcomes Research Institute in the United States advocate for engaging stakeholders in all aspects of the research process. Despite these efforts, there is a need for research to identify best practices and approaches for stakeholder engagement in research as current descriptions around processes are lacking. In this perspective paper, we share our insights and experiences with engaging youth with disabilities and families as members of the research team. We offer considerations and strategies for stakeholder engagement, as well as identify relevant frameworks to facilitate stakeholder engagement in research. We encourage researchers to share and document their experiences with stakeholder engagement in research to provide guidance for others with shared interests. We hope this paper will initiate conversations among researchers about best practices to maximize the full potential of stakeholders' time and input.
Metrics
Details
- Title
- Perspectives and Experiences with Engaging Youth and Families in Research
- Creators
- Tram Nguyen - School of Rehabilitation Science, McMaster UniversityRobert J Palisano - Department of Physical Therapy and Rehabilitation Sciences, Drexel UniversityIan Graham - Clinical Epidemiology Program, Ottawa Hospital Research Institute
- Publication Details
- Physical & occupational therapy in pediatrics, v 39(3), pp 310-323
- Publisher
- Taylor & Francis
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- [Retired Faculty]
- Web of Science ID
- WOS:000476920300005
- Scopus ID
- 2-s2.0-85053443333
- Other Identifier
- 991014877666204721
UN Sustainable Development Goals (SDGs)
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InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Pediatrics
- Rehabilitation