Files and links (1)
Accepted (AM)Open Access (License Unspecified), Open
Journal article
Priorities for autism spectrum disorder risk communication and ethics
Autism : the international journal of research and practice, v 17(6), pp 701-722
Nov 2013
PMID: 22917844
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Autism spectrum disorders are an issue of increasing public health significance. The incidence of autism spectrum disorders has been increasing in recent years, and they are associated with significant personal and financial impacts for affected persons and their families. In recent years, a large number of scientific studies have been undertaken, which investigate genetic and environmental risk factors for autism, with more studies underway. At present, much remains unknown regarding autism spectrum disorder risk factors, but the emerging picture of causation is in many cases complex, with multiple genes and gene–environment interactions being at play. The complexity and uncertainty surrounding autism spectrum disorder risk factors raise a number of questions regarding the ethical considerations that should be taken into account when undertaking autism spectrum disorder risk communication. At present, however, little has been written regarding autism spectrum disorder risk communication and ethics. This article summarizes the findings of a recent conference investigating ethical considerations and policy recommendations in autism spectrum disorder risk communication, which to the authors’ knowledge is the first of its kind. Here, the authors discuss a number of issues, including uncertainty; comprehension; inadvertent harm; justice; and the appropriate roles of clinicians, scientists, and the media in autism spectrum disorder risk communication.
Metrics
Details
- Title
- Priorities for autism spectrum disorder risk communication and ethics
- Creators
- Michael Yudell - Drexel University, USAHolly K Tabor - University of Washington, USA; Seattle Children’s Research Institute, USAGeraldine Dawson - University of North Carolina; Autism Speaks, USAJohn Rossi - Drexel University, USACraig Newschaffer - Drexel University, USA
- Publication Details
- Autism : the international journal of research and practice, v 17(6), pp 701-722
- Publisher
- SAGE Publications; London, England
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute; Community Health and Prevention
- Web of Science ID
- WOS:000326151100007
- Scopus ID
- 2-s2.0-84879313716
- Other Identifier
- 991014878646804721
UN Sustainable Development Goals (SDGs)
This publication has contributed to the advancement of the following goals:
InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Psychology, Developmental