Journal article
Profiles of family needs of children and youth with cerebral palsy
Child : care, health & development, v 38(6), pp 798-806
01 Nov 2012
PMID: 22035403
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background To identify profiles of family needs of families of children and youth with cerebral palsy (CP), and determine whether profile membership is related to child, family and service characteristics. Methods Participants were mostly mothers (80%) of 579 children and youth with CP. A family member completed modified version of the Family Needs Survey and questionnaires about their child, family and services. Research assistants determined the Gross Motor Function Classification System levels. K-means cluster analysis identified profiles of needs. Cluster membership was analysed to examine differences in clusters based on selected characteristics. Results Four profiles of needs were identified: Low needs, Needs related to community and financial resources, Needs related to child health condition and High needs. Profile membership was differentiated based on child/youth gross motor function, adaptive behaviour, family relationships, family income, access and effort to co-ordinate services. Conclusion Despite heterogeneity among individuals with CP and their families, four profiles of family needs were identified. In total, 51% of families had low needs suggesting that they are effectively managing their children's health conditions while 11% of families had high needs that may require high levels of services and supports. Service providers are encouraged to partner with families, provide anticipatory guidance and co-ordinate services.
Metrics
Details
- Title
- Profiles of family needs of children and youth with cerebral palsy
- Creators
- N. Almasri - University of JordanR. J. Palisano - Drexel UniversityC. Dunst - Orelena Hawks Puckett InstituteL. A. Chiarello - Drexel UniversityM. E. O'Neil - Drexel UniversityM. Polansky - Drexel University
- Publication Details
- Child : care, health & development, v 38(6), pp 798-806
- Publisher
- Wiley
- Number of pages
- 9
- Grant note
- 9197 / Shriners Hospitals for Children (COS)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- [Retired Faculty]; Physical Therapy (and Rehabilitation Sciences)
- Web of Science ID
- WOS:000309601000005
- Scopus ID
- 2-s2.0-84867397914
- Other Identifier
- 991019167913404721
UN Sustainable Development Goals (SDGs)
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InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Pediatrics
- Psychology, Developmental