Journal article
Providing Pediatric Palliative Care: PACT IN ACTION
MCN, the American journal of maternal child nursing, v 32(5), pp 279-287
01 Sep 2007
PMID: 17728588
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
High-quality pediatric palliative care should be an expected standard in the United States, especially since the publication of the numerous position statements such as "Percepts of Palliative Care for Children and Adolescents and Their Families," a joint statement created by the Association of Pediatric Oncology Nurses, the National Association of Neonatal, and the Society of Pediatric Nurses. Although many barriers still exists, dedicated individuals and teams strive to promote models of excellence and improve care for children with life-threatening conditions and their families. The Pediatric Advanced Care Team, a joint project of Dana-Farber Cancer Institute and Children's Hospitals, Boston, is one such interdisciplinary pediatric palliative care consultation service. Founded in 1997, we have grown and learned from formal study and our extensive clinical work with families, children and our colleagues. This article describes our journey as an interdisciplinary team forging a new service within two renowned medical institutions in which historically the primary emphasis of care has been on cure and innovation. Although these values remain, our work has resulted in an increased acceptance of balancing treatment of the underlying disease or condition along with treatment of the physical, psychosocial, and spiritual needs of the child and family through life and death. One of our goals is to help promote a balance of hope for cure with hope for comfort, dignity, and integrity for every child and family. [PUBLICATION ABSTRACT]
Metrics
Details
- Title
- Providing Pediatric Palliative Care: PACT IN ACTION
- Creators
- Janet Duncan - Boston Children's HospitalEmily Spengler - Boston Children's HospitalJoanne Wolfe - Boston Children's Hospital
- Publication Details
- MCN, the American journal of maternal child nursing, v 32(5), pp 279-287
- Publisher
- Lippincott Williams & Wilkins Ovid Technologies
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Pediatrics
- Web of Science ID
- WOS:000249318600005
- Scopus ID
- 2-s2.0-34548357020
- Other Identifier
- 991021838153104721
UN Sustainable Development Goals (SDGs)
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Nursing