Journal article
Proxy Healthcare Decision-Making for Persons With Intellectual Disability: Perspectives of Residential-Agency Directors
American journal on intellectual and developmental disabilities, v 114(6), pp 401-410
01 Nov 2009
PMID: 19792056
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Abstract Directors of residential agencies for persons with intellectual disability in one U.S. state completed a self-administered, mailed survey to assess relative importance of information sources and decision factors in proxy healthcare decision-making. The most important sources were physician recommendations and input from the person; family input, care staff recommendations, and medical records were less valued. The person's wishes and best interests and recommendations of medical experts were the most important decision factors. Less important were benefits and risks of the intervention, family wishes, and health status; little emphasis was accorded to religious affiliation and extra cost to agency. More research is needed on how best to elicit the wishes and determine what constitutes the “best interests” of these vulnerable individuals.
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Details
- Title
- Proxy Healthcare Decision-Making for Persons With Intellectual Disability: Perspectives of Residential-Agency Directors
- Creators
- Kathleen M Fisher - Drexel UniversityFredrick K Orkin - The Pennsylvania State University College of MedicineMichael J Green - The Pennsylvania State University College of MedicineVernon M Chinchilli - The Pennsylvania State University College of MedicineAnand Bhattacharya - Drexel University
- Publication Details
- American journal on intellectual and developmental disabilities, v 114(6), pp 401-410
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Doctoral Nursing
- Web of Science ID
- WOS:000271981500003
- Scopus ID
- 2-s2.0-75849160011
- Other Identifier
- 991014877671804721
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InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Education, Special
- Rehabilitation