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Quality of life among adolescents with cerebral palsy: what does the literature tell us?
Journal article   Open access   Peer reviewed

Quality of life among adolescents with cerebral palsy: what does the literature tell us?

Michael H Livingston, Peter L Rosenbaum, Dianne J Russell and Robert J Palisano
Developmental medicine and child neurology, v 49(3)
Mar 2007
PMID: 17355481
url
https://doi.org/10.1111/j.1469-8749.2007.00225.xView
Published, Version of Record (VoR) Open

Abstract

Severity of Illness Index Cerebral Palsy - complications Health Status Indicators Humans Adolescent Cerebral Palsy - physiopathology Quality of Life Cerebral Palsy - psychology Disabled Children - psychology
This review describes trends in quality of life (QOL) and health-related quality of life (HRQOL) among adolescents with cerebral palsy (CP). Twenty original articles were identified by a structured search of multiple databases and grouped by design. Categories included descriptive cross-sectional studies (n=8), measurement validation studies (n=9), and exploratory qualitative studies (n=3). Several trends were apparent. First, individuals with CP are reported to have decreased QOL and HRQOL compared with a normative population in some but not all areas of well-being. Second, functional status measures such as the Gross Motor Function Classification System are reliable indicators of variations in physical function, but do not correlate consistently with psychosocial well-being. Third, although adolescents with CP have different life issues than adults or children, limited research on factors associated with QOL and HRQOL has been described for this age range. We recommend that clinicians and researchers interested in assessing well-being among adolescents with CP include participants from across the spectrum of motor impairment, allow adolescents to self-report whenever possible, and assess adolescents independently, rather than including them with individuals from other age groups or clinical populations.

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146 citations in Scopus

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UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#3 Good Health and Well-Being

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Collaboration types
Domestic collaboration
International collaboration
Web of Science research areas
Clinical Neurology
Pediatrics
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