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Quality of life in children with spinal cord injury
Journal article   Peer reviewed

Quality of life in children with spinal cord injury

Oluwabunmi Oladeji, Therese E Johnston, Brian T Smith, Mary J Mulcahey, Randal R Betz and Richard T Lauer
Pediatric physical therapy, v 19(4)
01 Jan 2007
DOI: https://doi.org/10.1097/PEP.0b013e31815a12ef
PMID: 18004197

Abstract

PURPOSETo compare reports of the child's quality of life (QOL) between children with spinal cord injury (SCI) and their parents using the Pediatric Quality of Life 4.0 Generic Scales (PedsQL), and assess agreement between parent and child responses. To examine the influence of level of injury on QOL and internal consistency reliability of the PedsQL in pediatric SCI.METHODSTwenty-eight children (17 male children and 11 female children) between five and 13 years and their parents completed the PedsQL.RESULTSChildren rated their QOL better than their parents; however, there was good to excellent parent-child agreement. No differences were noted between children with tetraplegia and paraplegia. Low internal consistency reliability was obtained for various domains.CONCLUSIONSIn addition to using summary scores, specific ratings may raise important points for clinical decision-making. Results on internal consistency reliability suggest the need for condition-specific questionnaires for children with SCI.

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26 citations in Scopus

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