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Accepted (AM)Open Access (License Unspecified), Open
Journal article
Recruiting Persons with Dementia and Caregivers in a Clinical Trial: Dyads Perceptions
Western journal of nursing research, v 44(6), pp 557-566
Jun 2022
PMID: 33870784
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Recruitment for dementia research is challenging and costly. Using Ajzen's Theory of Planned Behavior we explored attitudes, perceived norms, and perceived behavioral control of persons living with dementia (PLWD) and their caregivers who participated in one clinical trial to better understand factors that influence dyads' decisions to enroll. We conducted semi-structured telephone interviews with 12 PLWD and 9 caregivers and utilized directed content analysis. Categories connected with positive attitudes about study enrollment were personal desires of wanting to learn and in-person meetings with knowledgeable staff. Additionally, participants said the money always helps in terms of the financial incentive. Participants reported enrolling to support another person (perceived norm). Study requirements were thought to be easy (perceived behavioral control). Participants highlighted the importance of flexible scheduling and study tasks being completed at their home. Findings can inform future recruitment efforts and should be investigated as effective recruitment methods in other clinical trials.
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Details
- Title
- Recruiting Persons with Dementia and Caregivers in a Clinical Trial: Dyads Perceptions
- Creators
- Miranda V McPhillips - University of PennsylvaniaDarina V Petrovsky - University of PennsylvaniaGlenna S Brewster - Emory UniversityJunxin Li - School of Nursing, John Hopkins University, Baltimore, MD, USANalaka S Gooneratne - University of PennsylvaniaNancy A Hodgson - University of PennsylvaniaJustine S Sefcik - Drexel University
- Publication Details
- Western journal of nursing research, v 44(6), pp 557-566
- Publisher
- Sage
- Grant note
- K23 NR018487 / NINR NIH HHS UL1 TR001878 / NCATS NIH HHS K23 NR018673 / NINR NIH HHS R00 NR016484 / NINR NIH HHS K99 NR016484 / NINR NIH HHS R01 NR015226 / NINR NIH HHS F32 AG060630 / NIA NIH HHS
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Doctoral Nursing
- Web of Science ID
- WOS:000644629000001
- Scopus ID
- 2-s2.0-85104476285
- Other Identifier
- 991019168905004721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Nursing