Journal article
Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER-MHOS) Linked Data Resource for Patient-Reported Outcomes Research in Older Adults with Cancer
Journal of the American Geriatrics Society (JAGS), v 64(1)
01 Jan 2016
PMID: 26782871
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Researchers and clinicians are increasingly recognizing the value of patient-reported outcome (PRO) data to better characterize people's health and experiences with illness and care. Considering the rising prevalence of cancer in adults aged 65 and older, PRO data are particularly relevant for older adults with cancer, who often require complex cancer care and have additional comorbid conditions. A data linkage between the Surveillance Epidemiology and End Results (SEER) cancer registry and the Medicare Health Outcomes Survey (MHOS) was created through a partnership between the National Cancer Institute and the Centers for Medicare and Medicaid Services that created the opportunity to examine PROs in Medicare Advantage enrollees with and without cancer. The December 2013 linkage of SEER-MHOS data included the linked data for 12 cohorts, bringing the number of individuals in the linked data set to 95,723 with cancer and 1,510,127 without. This article reviews the features of the resource and provides information on some descriptive characteristics of the individuals in the data set (health-related quality of life, body mass index, fall risk management, number of unhealthy days in the past month). Individuals without (n = 258,108) and with (n = 3,440) cancer (1,311 men with prostate cancer, 982 women with breast cancer, 689 with colorectal cancer, 458 with lung cancer) were included in the current descriptive analysis. Given increasing longevity, advances in effective therapies and earlier detection, and population growth, the number of individuals aged 65 and older with cancer is expected to reach more than 12 million by 2020. SEER-MHOS provides population-level, self-reported, cancer registry-linked data for person-centered surveillance research on this growing population.
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Details
- Title
- Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER-MHOS) Linked Data Resource for Patient-Reported Outcomes Research in Older Adults with Cancer
- Creators
- Erin E. Kent - Outcomes Research Branch Healthcare Delivery Research Program Division of Cancer Control and Population Sciences National Cancer Institute Rockville MarylandRochelle Malinoff - Health Services Advisory Group Medicare Health Outcomes Study Phoenix ArizonaHeather M. Rozjabek - Drexel UniversityAnita Ambs - National Cancer InstituteSteven B. Clauser - Patient-Centered Outcomes Research InstituteMarie A. Topor - Information Management ServicesGigi Yuan - Information Management ServicesJames Burroughs - Health Services Advisory Group Medicare Health Outcomes Study Phoenix ArizonaAnne B. Rodgers - National Cancer InstituteKimberly DeMichele - Centers for Medicare and Medicaid ServicesJanell L Mensinger
- Publication Details
- Journal of the American Geriatrics Society (JAGS), v 64(1)
- Publisher
- Wiley
- Number of pages
- 7
- Resource Type
- Journal article
- Language
- English
- Web of Science ID
- WOS:000371157900028
- Scopus ID
- 2-s2.0-84961388517
- Other Identifier
- 991019357639104721
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- Collaboration types
- Industry collaboration
- Domestic collaboration
- Web of Science research areas
- Geriatrics & Gerontology
- Gerontology