Journal article
Self-Management of Cystic Fibrosis: Short-Term Outcomes of the Cystic Fibrosis Family Education Program
Health education & behavior, v 24(5), pp 652-666
01 Oct 1997
PMID: 9307900
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
This study tested the efficacy of the Cystic Fibrosis Family Education Program, a cystic fibrosis self-management program, on improving participants' knowledge, self-efficacy, self-management behavior, health, and quality of life. A quasi-experimental pretest-posttest nonequivalent comparison group design was employed. Participants made up 104 patient-primary caregiver dyads from the intervention site cystic fibrosis center and 95 from the usual care comparison center. The intervention, a self-paced print curriculum based on social cognitive theory, targeted behavioral capability, self-efficacy, and outcome expectations and was implemented as an integral part of medical care. Parents, early childhood, middle childhood, and adolescents received separate materials on respiratory, nutrition and malabsorption, communication, and coping issues. Significant intervention effects were found on the knowledge scores for caregivers, adolescents, and children; caregiver and adolescent total self-management scores; Child Behavior Checklist total score; one parent coping scale score; the modified NIH score; NIH pulmonary factor 1; and the Brasfield total score. Significant interaction effects were evident in the self-efficacy scores for caregivers and children.
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Details
- Title
- Self-Management of Cystic Fibrosis: Short-Term Outcomes of the Cystic Fibrosis Family Education Program
- Creators
- L. Kay Bartholomew - The University of Texas Health Science Center at HoustonDanita I. Czyzewski - Baylor College of MedicineGuy S. Parcel - The University of Texas Health Science Center at HoustonPaul R. Swank - University of HoustonMarianna M. Sockrider - Texas Children's HospitalMarco J. Mariotto - University of HoustonDaniel V. Schidlow - St. Christopher's Hospital for ChildrenRobert J. Fink - Children's NationalDan K. Seilheimer - Baylor College of Medicine
- Publication Details
- Health education & behavior, v 24(5), pp 652-666
- Publisher
- Sage
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Pediatrics
- Web of Science ID
- WOS:A1997XW95300010
- Scopus ID
- 2-s2.0-0031255764
- Other Identifier
- 991021838700204721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Public, Environmental & Occupational Health