Journal article
Self-stigma in people living with dementia in Chile: A qualitative exploratory study
Aging & mental health, v ahead-of-print(ahead-of-print)
26 Oct 2021
PMID: 34772289
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Self-stigma is a dimension of stigma concerning how individuals internalize negative attributes and discriminate against their own selves. Dementia is a stigmatizing condition, and there is a paucity of research exploring the manifestations and implications of self- stigma in people living with dementia in various contexts.
To examine how self-stigma manifests in the experiences of people living with early-stage dementia in Santiago, Chile.
Six men and five women living with early-stage dementia of the Alzheimer's type, aged between 64 and 82 years old (mean = 70).
One-on-one interviews were conducted, focusing on the experience of people living with early-stage dementia to provide insights on how self-stigma manifests. Interviews were analyzed with a qualitative content analysis approach using Corrigan's social cognitive model of self-stigma (2016).
Self-stigma manifested as devaluation and blame at a cognitive level, and as restriction of participation at a behavioral level. Families and dementia education emerged as contextual elements that influenced the internalization of negative attributes in the participants' experiences.
Consistent with previous qualitative research, we found that self-stigma has negative consequences as it concerns emotions, self-prejudices, and self-discrimination. This study provides distinctive insights on the process of internalization of stigma and the influence of external elements. Self-stigma remains an understudied but important feature of the dementia experience, an understanding of which can lead to developing and testing supportive approaches upon diagnosis to minimize its adverse effects.
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Details
- Title
- Self-stigma in people living with dementia in Chile: A qualitative exploratory study
- Creators
- Jean Gajardo - University of ChileRubén Alvarado - University of ChileAndrea Slachevsky - University of ChileLaura N. Gitlin - Drexel University
- Publication Details
- Aging & mental health, v ahead-of-print(ahead-of-print)
- Publisher
- Routledge
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- College of Nursing and Health Professions
- Web of Science ID
- WOS:000718230300001
- Scopus ID
- 2-s2.0-85119369720
- Other Identifier
- 991019168984504721
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Geriatrics & Gerontology
- Gerontology
- Psychiatry