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Short report: Improving record–review surveillance of young children with an autism spectrum disorder
Journal article   Open access   Peer reviewed

Short report: Improving record–review surveillance of young children with an autism spectrum disorder

Lisa D Wiggins, Diana L Robins and Marshalyn Yeargin-Allsopp
Autism : the international journal of research and practice, v 17(5), pp 623-629
Sep 2013
PMID: 22987886
url
https://doi.org/10.1177/1362361312452161View
Published, Version of Record (VoR) Open

Abstract

autism spectrum disorder early identification surveillance
Introduction: Records-based autism spectrum disorder surveillance developed at the Centers for Disease Control and Prevention has been extended to younger cohorts, although the utility of additional record sources has not been examined. We therefore conducted a pilot project to describe whether Centers for Disease Control and Prevention surveillance could identify younger children with an autism spectrum disorder evaluated as part of an ongoing screening study at Georgia State University. Methods: In all, 31 families of children who screened positive for autism spectrum disorder and received a clinical evaluation at Georgia State University agreed to participate in the project. Of these, 10 children lived inside the surveillance area and had records abstracted and reviewed for this project. Centers for Disease Control and Prevention surveillance results (i.e. autism spectrum disorder or non-autism spectrum disorder) were compared with Georgia State University evaluation results (i.e. autism spectrum disorder or non-autism spectrum disorder). Results: In all, 4 of the 10 children were diagnosed with an autism spectrum disorder after the Georgia State University evaluation. None of the 4 children with an autism spectrum disorder were identified by current Centers for Disease Control and Prevention surveillance methods but all 4 children were identified by Centers for Disease Control and Prevention surveillance methods when additional record sources were included (i.e. records from the statewide early intervention program and Georgia State University evaluation). Conclusion: These findings suggest that partnering with early intervention programs and encouraging early autism spectrum disorder screening might improve autism spectrum disorder surveillance among young children.

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Collaboration types
Domestic collaboration
Web of Science research areas
Psychology, Developmental
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