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Social-Ecological Correlates in Adult Autism Outcome Studies: A Scoping Review
Journal article   Open access

Social-Ecological Correlates in Adult Autism Outcome Studies: A Scoping Review

Kristy A Anderson, Anne M Roux, Alice Kuo and Paul T Shattuck
Pediatrics (Evanston), v 141(Suppl 4), pp S306-S317
Apr 2018
PMID: 29610412
url
https://doi.org/10.1542/peds.2016-4300hView
Published, Version of Record (VoR)Maybe Open Access (Publisher Bronze) Open

Abstract

The transition into adulthood is a critical period in the life course that shapes later outcomes. Many adults on the autism spectrum fare poorly across a wide range of quality of life indicators. Understanding the multilevel factors that influence transition outcomes is necessary to develop strategies that promote better outcomes. In this scoping review, we characterize the use of social-ecological factors in adult autism outcome studies, identify understudied areas of research, and provide recommendations for future research. We conducted a literature search for studies in which the relationship between social-ecological factors and transition outcomes among transition-age youth with autism was assessed. We organized variables used in studies across 5 levels of influence: family-, interpersonal-, institutional-, community-, and policy-level factors. Our findings reveal that both breadth and depth of social-ecological factors usage in autism outcomes studies is limited because of the narrow inclusion of variables across social-ecological levels, the overreliance on a limited number of national data sets, and the overall lack of variation in research design. We propose 9 recommendations to inform the development of multilevel studies.

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Collaboration types
Domestic collaboration
Web of Science research areas
Pediatrics
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