Journal article
Stakeholder Perspectives on Research and Practice in Autism and Transition
Pediatrics (Evanston), v 141(Suppl 4), pp S293-S299
01 Apr 2018
PMID: 29610410
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
OBJECTIVES: Individuals with autism spectrum disorder (ASD) are reported to experience significant challenges during the transition to adulthood. Although recent evidence indicates that individuals with ASD experience poor outcomes in adulthood, little is understood about the contributing factors. In this qualitative study, we investigated the barriers to and needs in research and practice in the transition to adulthood among individuals with ASD.
METHODS: Thirteen researchers, including service providers, family members, and an individual with ASD participated in 30- to 60-minute, semistructured, open-ended telephone interviews. Interviews were transcribed, and data were analyzed by using an inductive approach to identify themes related to barriers to and needs in the transition to adulthood for youth with ASD.
RESULTS: Stakeholders identified the need for transition planning and preparation to begin earlier and for systems to better accommodate the interests and varying abilities of individuals with ASD. Stakeholders also felt that parent and service provider expectations and perceptions influence early opportunities and experiences offered throughout the transition process.
CONCLUSIONS: This study reveals the multilevel barriers to and needs in the transition to adulthood and the need for interagency and multidisciplinary collaboration and research to address the varying levels of needs, abilities, and multisector challenges.
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Details
- Title
- Stakeholder Perspectives on Research and Practice in Autism and Transition
- Creators
- Alice A. Kuo - Children's Hospital of Los AngelesTara Crapnell - Departments of Internal Medicine and Pediatrics, and.Lynette Lau - Departments of Internal Medicine and Pediatrics, and.Kristy A. Anderson - Drexel UniversityPaul Shattuck - Drexel University
- Publication Details
- Pediatrics (Evanston), v 141(Suppl 4), pp S293-S299
- Publisher
- Amer Acad Pediatrics
- Number of pages
- 7
- Grant note
- Health Care Transitions Research Network for Youth and Young Adults with Autism Spectrum Disorders UA6MC27364 / Health Resources and Services Administration of the US Department of Health and Human Services
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute
- Web of Science ID
- WOS:000454741000005
- Scopus ID
- 2-s2.0-85044728665
- Other Identifier
- 991019168290804721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Pediatrics