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States' use of Medicaid to needs of autistic individuals
Journal article   Open access   Peer reviewed

States' use of Medicaid to needs of autistic individuals

Lindsay Lawer Shea, Kaitlin H. Koffer Miller, Kate Verstreate, Sha Tao and David Mandell
Health services research, v 56(6), pp 1207-1214
01 Dec 2021
PMID: 34251042
url
https://doi.org/10.1111/1475-6773.13671View
Published, Version of Record (VoR)Open Access (License Unspecified) Open

Abstract

Health Care Sciences & Services Health Policy & Services Life Sciences & Biomedicine Science & Technology
Objective To assess the use of Medicaid programs, including waivers, to address the needs of aging autistic individuals. Data sources We gathered data on Medicaid programs in place between 2004 and 2015 for 50 states and the District of Columbia from the Centers for Medicare and Medicaid Services website, by contacting state Medicaid administrators and advocacy groups, and by reviewing the Medicaid Analytic eXtract Waiver Crosswalk. Study design This retrospective analysis classified each Medicaid program and documented state changes over time in eligibility criteria: those serving autism spectrum disorder only, autism spectrum disorder or intellectual disability, and intellectual disability only. Data collection/extraction methods We captured age and diagnosis eligibility criteria for Medicaid programs serving any of the three target groups. Principal findings A total of 269 Medicaid programs met our criteria and most programs (51%) were 1915(c) waivers. The number of autism-specific 1915(c) waivers grew more than fivefold during the study period, outpacing increases in waivers serving individuals with intellectual disability. Conclusions States varied in their use of Medicaid to address the needs of the aging autism population. Further study of characteristics of states that changed their Medicaid programs, and of the health care use and outcomes associated with these changes, are needed to identify opportunities to replicate effective approaches to meeting the needs of this population.

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Health Care Sciences & Services
Health Policy & Services
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