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Published, Version of Record (VoR)CC BY V4.0, Open
Journal article
Study protocol: functioning curves and trajectories for children and adolescents with cerebral palsy in Brazil - PartiCipa Brazil
BMC pediatrics, v 20(1), pp 393-393
20 Aug 2020
PMID: 32819318
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Gross motor development curves for children with Cerebral Palsy (CP), grouped by Gross Motor Function Classification System (GMFCS) levels, help health care professionals and parents to understand children's motor function prognosis. Although these curves are widely used in Brazil to guide clinical decision-making, they were developed with Canadian children with CP. Little is known about how these patterns evolve in children and adolescents with CP in low-income countries like Brazil. The PARTICIPA BRAZIL aims to: (i) to identify and draw a profile of functioning and disability of Brazilian children and adolescents with CP by classifying them, for descriptive purposes, with all five valid and reliable functional classifications systems (gross motor function, manual ability, communication function, visual and eating and drinking abilities); (ii) to create longitudinal trajectories capturing the mobility capacity of Brazilian children and adolescents with CP for each level of the GMFCS; (iii) to document longitudinal trajectories in the performance of activities and participation of Brazilian children and adolescents with CP across two functional classification systems: GMFCS and MACS (Manual Abilities Classification System); (iv) to document longitudinal trajectories of neuromusculoskeletal and movement-related functions and exercise tolerance functions of Brazilian children and adolescents with CP for each level of the GMFCS; and (v) to explore interrelationships among all ICF framework components and the five functional classification systems in Brazilian children and adolescents with CP.
We propose a multi-center, longitudinal, prospective cohort study with 750 Brazilian children and adolescents with CP from across the country. Participants will be classified according to five functional classification systems. Contextual factors, activity and participation, and body functions will be evaluated longitudinally and prospectively for four years. Nonlinear mixed-effects models for each of the five GMFCS and MACS levels will be created using test scores over time to create prognosis curves. To explore the interrelationships among ICF components, a multiple linear regression will be performed.
The findings from this study will describe the level and nature of activities and levels of participation of children and youth with CP in Brazil. This will support evidence-based public policies to improve care to this population from childhood to adulthood, based on their prognosis.
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Details
- Title
- Study protocol: functioning curves and trajectories for children and adolescents with cerebral palsy in Brazil - PartiCipa Brazil
- Creators
- Paula S C Chagas - Graduate Program in Rehabilitation Sciences and Physical-Functional Performance, Universidade Federal de Juiz de Fora, Av. Eugênio do Nascimento, s / n - Dom Bosco, Juiz de Fora, Minas Gerais, Brazil. paula.chagas@ufjf.edu.brCarolyne M Drumond - Universidade Federal de Juiz de ForaAline M Toledo - Graduate Program in Rehabilitation Sciences, Universidade de Brasília, Brasília, BrazilAna Carolina de Campos - Federal University of São CarlosAna Cristina R Camargos - Graduate Program in Rehabilitation Sciences, School of Physical Education, Physical Therapy and Occupational Therapy, Universidade Federal de Minas Gerais, Belo Horizonte, Minas Gerais, BrazilEgmar Longo - Federal University of Rio Grande do NorteHércules R Leite - Universidade Federal de Minas GeraisKênnea M A Ayupe - University of BrasíliaRafaela S Moreira - Universidade Federal de Santa CatarinaRosane L S Morais - Graduate Program in Health, Society and Environment and Department of Physiotherapy, Universidade Federal do Vale do Jequitinhonha e Mucuri, Diamantina, Minas Gerais, BrazilRobert J Palisano - Drexel UniversityPeter Rosenbaum - McMaster UniversityPartiCipa Brazil Research Group
- Publication Details
- BMC pediatrics, v 20(1), pp 393-393
- Publisher
- Springer BMC
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- [Retired Faculty]
- Web of Science ID
- WOS:000567074400002
- Scopus ID
- 2-s2.0-85089769084
- Other Identifier
- 991019167881704721
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Pediatrics