Journal article
Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities
Journal of autism and developmental disorders, v 48(12), pp 4207-4221
01 Dec 2018
PMID: 29980899
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
The purpose of this study was to interview parents of children with severe or profound intellectual and developmental disabilities to determine the perceived value of support groups and identify recommendations for support group design based on their experiences and feedback. Despite varied experiences with support groups, most parents indicated the value of support groups is in providing a place where parents can feel understood and both share and gather information. Parents recommended support groups be targeted for parents of children with similar disabilities and needs, have flexible structures and qualified leaders, and offer a wide variety of content in various formats. Given parental recommendations for support group design varied, summary recommendations addressing a wide range of preferences are provided.
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Details
- Title
- Support Group Value and Design for Parents of Children with Severe or Profound Intellectual and Developmental Disabilities
- Creators
- Jeffrey B Jackson - Virginia TechSarah R Steward - Virginia TechSusanne Olsen Roper - Brigham Young UniversityBertranna A Muruthi - Virginia Tech
- Publication Details
- Journal of autism and developmental disorders, v 48(12), pp 4207-4221
- Publisher
- Springer Nature
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Community Health and Prevention
- Web of Science ID
- WOS:000449292800024
- Scopus ID
- 2-s2.0-85049588246
- Other Identifier
- 991021894658304721
UN Sustainable Development Goals (SDGs)
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Psychology, Developmental