Journal article
The Current State of Neonatal Neurodevelopmental Follow-Up Programs in North America: A Children's Hospitals Neonatal Consortium Report
American journal of perinatology
08 Mar 2024
PMID: 38458236
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
To determine neonatal neurodevelopmental follow-up (NDFU) practices across academic centers.
Cross-sectional survey that addressed center specific neonatal NDFU practices within the Children's Hospitals Neonatal Consortium.
Survey response rate was 76% and 97% of respondents had a formal NDFU program. Programs were commonly staffed by neonatologists (80%), physical therapists (77%), and nurse practitioners (74%). Median gestational age at birth identified for follow-up was ≤32 weeks (range 26-36). Median duration was 3 years (range 2-18). Ninety-seven percent of sites used Bayley Scales of Infant and Toddler Development, but instruments used varied across ages. Scores were recorded in discrete electronic data fields at 43% of sites. Social determinants of health data were collected by 63%. Care coordination and telehealth services were not universally available.
NDFU clinics are almost universal within CHNC centers. Commonalities and variances in practice highlight opportunities for data sharing and development of best practices.
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Details
- Title
- The Current State of Neonatal Neurodevelopmental Follow-Up Programs in North America: A Children's Hospitals Neonatal Consortium Report
- Creators
- Vilmaris Quinones Cardona - Drexel University College of Medicine, Philadelphia, United StatesSusan S CohenNoah Cook - Children's Hospital of PhiladelphiaMehmet Cizmeci - SickKids FoundationAmit Chandel - Atrium Health Wake Forest BaptistRobert DiGeronimo - University of WashingtonSemsa Gogcu - Atrium Health Wake Forest BaptistEni Jano - Children's Hospital of Los AngelesKojima Katsuaki - Cincinnati Children's Hospital Medical CenterKyong-Soon Lee - SickKids FoundationRyan M McAdams - University of Wisconsin–MadisonOgechukwu Roland Menktiti - Drexel UniversityUlrike Mietzsch - University of WashingtonEric Peeples - University of Nebraska Medical CenterElizabeth Sewell - Emory UniversityJeffrey Shenberger - Connecticut Children's Medical CenterAn Massaro - Children's NationalGirija Natarajan - Children's Hospital of MichiganRakesh Rao - Washington University in St. LouisMaria L V Dizon - Northwestern University
- Publication Details
- American journal of perinatology
- Publisher
- Thieme
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Pediatrics
- Web of Science ID
- WOS:001197576100001
- Scopus ID
- 2-s2.0-85187936927
- Other Identifier
- 991021861661204721
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Obstetrics & Gynecology
- Pediatrics