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Journal article
The Development of a Caregiver-focused, Web-based Program to Assess and Manage Behavioral and Psychological Symptoms of Dementia
Alzheimer disease and associated disorders, v 31(3)
01 Jul 2017
PMID: 27849639
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background/Objectives: Behavioral and psychological symptoms of dementia (BPSD) are nearly universal in dementia and associated with multiple negative outcomes. Current real-world management is largely pharmacologic, despite poor risk/benefit. The WeCareAdvisor was designed to enable family caregivers to assess, manage, and track BPSD using nonpharmacologic strategies.
Design: In-depth qualitative data were collected from family caregivers of people with dementia to inform: (1) style of approach and "look and feel" of the tool, and (2) the types of psychoeducation most needed by caregivers.
Results: We conducted 4 focus groups and a technology survey (n=26) as well as additional individual semistructured interviews (n=12) with family caregivers. Main themes of the qualitative work included: (1) need to minimize difficulty and training time; (2) importance of "one-stop shopping" for information; and (3) necessity for information to be tailored to the caregiver and person with dementia. This information was then combined with effective existing evidence-based behavioral strategies to create a web-based tailored caregiver-support tool.
Conclusions: The We Care Advisor was designed with input on functionality and content by end-users, family caregivers. The randomized controlled trial of We Care Advisor will test whether the tool improves outcomes including caregiver upset and burden and frequency and severity of BPSD.
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Details
- Title
- The Development of a Caregiver-focused, Web-based Program to Assess and Manage Behavioral and Psychological Symptoms of Dementia
- Creators
- Helen C. Kales - Univ Michigan, Dept Psychiat, 4250 Plymouth Rd,POB 5765, Ann Arbor, MI 48109 USALaura N. Gitlin - Johns Hopkins UniversityBarbara Stanislawski - Univ Michigan, Dept Psychiat, 4250 Plymouth Rd,POB 5765, Ann Arbor, MI 48109 USAKatherine Marx - Johns Hopkins UniversityMolly Turnwald - Univ Michigan, Dept Psychiat, 4250 Plymouth Rd,POB 5765, Ann Arbor, MI 48109 USADaphne C. Watkins - Univ Michigan, Dept Psychiat, 4250 Plymouth Rd,POB 5765, Ann Arbor, MI 48109 USAConstantine G. Lyketsos - Johns Hopkins Bayview, Dept Psychiat & Behav Sci, Baltimore, MD USA
- Publication Details
- Alzheimer disease and associated disorders, v 31(3)
- Publisher
- Lippincott Williams & Wilkins
- Number of pages
- 8
- Grant note
- P50AG005146 / NATIONAL INSTITUTE ON AGING; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute on Aging (NIA) R01NR014200 / NATIONAL INSTITUTE OF NURSING RESEARCH; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR) NR014200-01 / National Institute of Nursing Research; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- College of Nursing and Health Professions; Drexel University
- Web of Science ID
- WOS:000408516100014
- Scopus ID
- 2-s2.0-84995483133
- Other Identifier
- 991020111977104721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Clinical Neurology
- Pathology