Journal article
The Importance of Patient Participation in Second-Line Chemotherapy Decisions: Perspectives of African-American Patients
Journal of the National Medical Association, v 100(12), pp 1434-1440
Dec 2008
PMID: 19110911
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Minority populations have been considered to be less-active participants in their health and, consequently, more vulnerable to having decisions made for them.
We interviewed African-American patients (N=26) with cancer who had recently consented to second-line chemotherapy, offered when their disease was no longer responding to standard first-line regimen.
The majority (73%) reported involvement in the decision to start second-line chemotherapy. Forty-two percent reported making the decision together with their doctor. Support for autonomy was positively associated with education (p=0.01). Information seeking was considered more important than participating in decision-making. Patients who were less educated and had lower income reported stronger internal belief that their own actions and behaviors would determine their future health (p=0.04, p=0.007, respectively). Depression was identified in 35% of the study group and found not to be associated with any of the main outcomes.
Although the majority of patients report participating in the decision to begin second-line chemotherapy, there are a diversity of views towards autonomy, the importance of information seeking and determinants of future health. Understanding patients’ beliefs and attitudes around the time of disease recurrence may assist clinicians in supporting patients during this stressful time.
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Details
- Title
- The Importance of Patient Participation in Second-Line Chemotherapy Decisions: Perspectives of African-American Patients
- Creators
- Etienne Phipps - Einstein Healthcare NetworkNora Madison - Einstein Healthcare NetworkMarcia Polansky - Drexel UniversityWilliam Tester - Einstein Healthcare Network
- Publication Details
- Journal of the National Medical Association, v 100(12), pp 1434-1440
- Publisher
- Elsevier
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- [Retired Faculty]
- Web of Science ID
- WOS:000261654900008
- Scopus ID
- 2-s2.0-58249123932
- Other Identifier
- 991019169537804721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Health Care Sciences & Services