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Accepted (AM)Open Access (License Unspecified), Open
Journal article
The International Collaboration for Autism Registry Epidemiology (iCARE): Multinational Registry-Based Investigations of Autism Risk Factors and Trends
Journal of autism and developmental disorders, v 43(11), pp 2650-2663
01 Nov 2013
PMID: 23563868
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.
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Details
- Title
- The International Collaboration for Autism Registry Epidemiology (iCARE): Multinational Registry-Based Investigations of Autism Risk Factors and Trends
- Creators
- Diana E. Schendel - Aarhus UniversityMichaeline Bresnahan - Columbia UniversityKim W. Carter - The Kids Research Institute AustraliaRichard W. Francis - The Kids Research Institute AustraliaMika Gissler - Finnish Institute for Health and WelfareTherese K. Gronborg - Univ Aarhus, Dept Publ Hlth, Aarhus, DenmarkRaz Gross - Sheba Medical CenterNina Gunnes - Norwegian Institute of Public HealthMady Hornig - Columbia UniversityChristina M. Hultman - Karolinska InstitutetAmanda Langridge - The Kids Research Institute AustraliaMarlene B. Lauritsen - Aarhus University HospitalHelen Leonard - The Kids Research Institute AustraliaErik T. Parner - Aarhus UniversityAbraham Reichenberg - Icahn School of Medicine at Mount SinaiSven Sandin - Karolinska InstitutetAndre Sourander - Turku University HospitalCamilla Stoltenberg - Norwegian Institute of Public HealthAuli Suominen - University of TurkuPal Suren - Norwegian Institute of Public HealthEzra Susser - Columbia University
- Publication Details
- Journal of autism and developmental disorders, v 43(11), pp 2650-2663
- Publisher
- Springer Nature
- Number of pages
- 14
- Grant note
- MR/K006525/1 / MRC; UK Research & Innovation (UKRI); Medical Research Council UK (MRC) CC999999 / Intramural CDC HHS MR/K006525/1 / Medical Research Council; UK Research & Innovation (UKRI); Medical Research Council UK (MRC); European Commission
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute
- Web of Science ID
- WOS:000325633000013
- Scopus ID
- 2-s2.0-84886773249
- Other Identifier
- 991021229993304721
UN Sustainable Development Goals (SDGs)
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Psychology, Developmental