Journal article
The Lupus Foundation as an additional source for case ascertainment: Developing a community‐based Lupus registry
Arthritis and rheumatism, v 13(3), pp 137-140
Jun 2000
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Objective
To determine whether the local Lupus Foundation of America (LFA)
chapter would provide a unique source of additional lupus incident
cases for a population‐based incidence registry of SLE.
Methods
We reviewed membership and telephone records from the LFA to identify
potential lupus cases. These potential cases were compared with the
names on our previously developed incidence registry. Non‐matches were
interviewed concerning demographic characteristics and the signs and
symptoms of lupus.
Results
Of the 449 potential lupus cases identified through the LFA Western
Pennsylvania Chapter (WPC), 108 (24%) were already in the incident
lupus registry. Of the remaining unmatched cases, 26 reported a
diagnosis of lupus in Allegheny County between 1985 and 1990. Of these,
5 patients met the criteria for definite or probable lupus.
Conclusion
The LFA‐WPC provided a negligible advantage in identifying additional
incident lupus cases to those already identified through an established
registry.
Metrics
5 Record Views
Details
- Title
- The Lupus Foundation as an additional source for case ascertainment: Developing a community‐based Lupus registry
- Creators
- Shirley G. Fitzgerald - University of PittsburghC. Kent Kwoh - Case Western Reserve UniversityDaniel McCarty - The University of MelbourneRosalind Ramsey-Goldman - Northwestern UniversityThomas A. Medsger - University of PittsburghSusan Manzi - University of Pittsburgh
- Publication Details
- Arthritis and rheumatism, v 13(3), pp 137-140
- Publisher
- John Wiley & Sons, Inc; PHILADELPHIA
- Number of pages
- 4
- Grant note
- NIH/MAC (1‐P60‐AR‐44811 01; NIH/5R01 HL5490002) Lupus Foundation of America, Western Pennsylvania Chapter American Heart Association Arthritis Foundation
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- General Internal Medicine
- Web of Science ID
- WOS:000167015900002
- Other Identifier
- 991021934009604721
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Rheumatology