Journal article
The Perceived Ostomy Educational Needs of Pediatric Patients With Inflammatory Bowel Disease and Their Caregivers
Journal of pediatric gastroenterology and nutrition, v 70(6), pp 849-852
19 Feb 2020
PMID: 32079983
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Inflammatory Bowel Disease (IBD) is a chronic disease causing inflammation of the gastrointestinal tract. Some patients require ostomy surgery to optimize their health. This study assessed perceived medical and psychosocial educational needs related to ostomy surgery in pediatric patients with IBD. This mixed-methods study included qualitative interviews of pediatric patients and caregivers with demographic/medical variables obtained from medical records. Participants (n = 8) had an average age of 15.62 years (SD = 2.97). Mean length of diagnosis was 4.5 years (SD = 3.6 years). Interviews were transcribed and coded. Qualitative coding of narratives identified main codes of Ostomy Surgery, Pre-Operative Concerns, Post-Operative Concerns, Education Preferences, and Social Concerns, with various sub-codes. Codes captured unfamiliarity with the ostomies, preferences for education from a medical provider, and psychosocial concerns. Results suggest pediatric patients with IBD have limited understanding of ostomies and limited insight into educational preferences. These findings highlight the importance of developmentally-appropriate information for accessible ostomy education.
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Details
- Title
- The Perceived Ostomy Educational Needs of Pediatric Patients With Inflammatory Bowel Disease and Their Caregivers
- Creators
- Jennie David - Nationwide Children's HospitalSteffany Moreno - Drexel UniversityRhea Daniel - St. Christopher's Hospital for ChildrenHarpreet Pall - Hackensack Meridian Health
- Publication Details
- Journal of pediatric gastroenterology and nutrition, v 70(6), pp 849-852
- Publisher
- Lippincott
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Pediatrics
- Web of Science ID
- WOS:000561374600031
- Scopus ID
- 2-s2.0-85085265261
- Other Identifier
- 991019168381004721
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Gastroenterology & Hepatology
- Nutrition & Dietetics
- Pediatrics