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Accepted (AM)Open Access (License Unspecified), Open
Journal article
The Significance of Benefit Perceptions for the Ethics of HIV Research Involving Adolescents in Kenya
Journal of empirical research on human research ethics, v 12(4)
Oct 2017
PMID: 28728497
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Assessment of benefits is traditionally regarded as crucial to the ethical evaluation of research involving human participants. We conducted focus group discussions (FGDs) with health and other professionals engaged with adolescents, caregivers/parents, and adolescents in Siaya County, Kenya, to solicit opinions about appropriate ways of conducting HIV research with adolescents. Our data revealed that many focus group participants have a profoundly positive conception of participation in health research, including studies conferring seemingly few benefits. In this article, we identify and analyze five different but interrelated types of benefits as perceived by Kenyan adolescent and adult stakeholders in HIV research, and discuss their ethical significance. Our findings suggest that future empirical and conceptual research should concentrate on factors that may trigger researcher obligations to improve benefit perceptions among research participants.
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Details
- Title
- The Significance of Benefit Perceptions for the Ethics of HIV Research Involving Adolescents in Kenya
- Creators
- Stuart Rennie - University of North Carolina at Chapel HillAllison K Groves - Drexel UniversityDenise Dion Hallfors - Pacific InstituteBonita J Iritani - Pacific InstituteFredrick S Odongo - Kenya Medical Research InstituteWinnie K Luseno - Pacific Institute
- Publication Details
- Journal of empirical research on human research ethics, v 12(4)
- Publisher
- Sage
- Grant note
- P30 AI050410 / NIAID NIH HHS R01 MH102125 / NIMH NIH HHS
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Community Health and Prevention
- Web of Science ID
- WOS:000411082300010
- Scopus ID
- 2-s2.0-85029296256
- Other Identifier
- 991019169006204721
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Ethics
- Medical Ethics