Journal article
The Sjospacing diaeresisgren's Working Group: The 2023 OMERACT meeting and provisional domain generation
Seminars in arthritis and rheumatism, v 65, 152378
01 Apr 2024
PMID: 38310657
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Sjo center dot gren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.
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Details
- Title
- The Sjospacing diaeresisgren's Working Group: The 2023 OMERACT meeting and provisional domain generation
- Creators
- Rachael A. Gordon - University of PittsburghYann Nguyen - Assistance Publique – Hôpitaux de ParisNathan Foulquier - Université de Bretagne OccidentaleMaxime Beydon - Assistance Publique – Hôpitaux de ParisTamer A. Gheita - Cairo UniversityRaouf Hajji - University of SousseIlfita Sahbudin - University of BirminghamAlberta Hoi - Monash UniversityWan-Fai Ng - Newcastle Univ, Translat & Clin Res Inst, Newcastle Upon Tyne, Northumberland, EnglandJose Alexandre Mendonca - Universidade Estadual de Campinas (UNICAMP)Daniel J. Wallace - Cedars-Sinai Medical CenterBeverley Shea - University of OttawaGeorge A. W. Bruyn - TergooiSusan M. Goodman - Cornell UniversityBenjamin A. Fisher - University of BirminghamChiara Baldini - University of PisaKarina D. Torralbat - Loma Linda UniversityHendrika Bootsma - University Medical Center GroningenEsen Akpek - Johns Hopkins MedicineSezen Karakus - Johns Hopkins UniversityAlan N. Baer - Johns Hopkins MedicineSoumya Chakravarty - Drexel UniversityLene Terslev - Glostrup HospitalMaria-Antonietta D'Agostino - Univ Cattolica Sacro Cuore, Fdn Policlin Univ Agostino Gemelli, Rheumatol Dept, IRCSS, Rome, ItalyXavier Mariette - Centre Hospitalier Régional Universitaire de BrestDana Direnzo - University of PennsylvaniaAstrid Rasmussen - Oklahoma Medical Research FoundationAthena Papas - Tufts UniversityCristina Montoya - University of OttawaSuzanne Arends - University Medical Center GroningenMd Yuzaiful Md Yusof - NIHR Leeds Musculoskeletal Biomedical Research UnitIonut Pintilie - University of Wisconsin–MadisonBlake M. Warnerjj - Natl Inst Dent & Craniofacial Res, Salivary Disorders Unit, NIH, Bethesda, MD USAKatherine M. Hammitt - Rome FoundationVibeke Strand - Stanford UniversityCoralie Bouillot - Stanford UniversityPeter Tugwell - Stanford UniversityNevsun Inanc - Marmara UniversityJose Luis Andreu - Hospital Universitario Puerta de Hierro MajadahondaMarie Wahren-Herlenius - Karolinska InstitutetValerie Devauchelle-Pensec - InsermCaroline H. Shiboski - University of California, San FranciscoAnas Benyoussef - Centre Hospitalier Régional Universitaire de BrestSharmila MasliAdrian Y. S. Lee - Westmead HospitalDivi Cornec - Université de Bretagne OccidentaleSimon Bowman - University of BirminghamMaureen Rischmueller - The University of AdelaideSara McCoy - University of Wisconsin–MadisonRaphaele Seror - Université Paris-Saclay
- Publication Details
- Seminars in arthritis and rheumatism, v 65, 152378
- Publisher
- Elsevier
- Number of pages
- 6
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Rheumatology; General Internal Medicine
- Web of Science ID
- WOS:001182269200001
- Scopus ID
- 2-s2.0-85183972738
- Other Identifier
- 991021930319504721
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- Collaboration types
- Industry collaboration
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Rheumatology