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The continuum of care for individuals with lifelong disabilities: role of the physical therapist
Journal article   Open access   Peer reviewed

The continuum of care for individuals with lifelong disabilities: role of the physical therapist

Margo N Orlin, Nancy A Cicirello, Anne E O'Donnell and Antonette K Doty
Physical therapy, v 94(7), pp 1043-1053
Jul 2014
PMID: 24557656
url
https://doi.org/10.2522/ptj.20130168View
Published, Version of Record (VoR)Maybe Open Access (Publisher Bronze) Open

Abstract

Adolescent Aging - physiology Child Child, Preschool Community Health Services Cooperative Behavior Developmental Disabilities - economics Developmental Disabilities - physiopathology Developmental Disabilities - rehabilitation Fitness Centers Health Services Accessibility Humans Infant Infant, Newborn Insurance Coverage Insurance, Health Intellectual Disability - complications Intellectual Disability - physiopathology Physical Therapists Professional Role Transition to Adult Care Young Adult
Many individuals with lifelong disabilities (LLDs) of childhood onset are living longer, participating in adult roles, and seeking comprehensive health care services, including physical therapy, with greater frequency than in the past. Individuals with LLDs have the same goals of health and wellness as those without disabilities. Aging with a chronic LLD is not yet well understood; however, impairments such as pain, fatigue, and osteoporosis often present earlier than in adults who are aging typically. People with LLDs, especially those living with developmental disabilities such as cerebral palsy, myelomeningocele, Down syndrome, and intellectual disabilities, frequently have complex and multiple body system impairments and functional limitations that can: (1) be the cause of numerous and varied secondary conditions, (2) limit overall earning power, (3) diminish insurance coverage, and (4) create unique challenges for accessing health care. Collaboration between adult and pediatric practitioners is encouraged to facilitate smooth transitions to health practitioners, including physical therapists. A collaborative client-centered emphasis to support the transition to adult-oriented facilities and promote strategies to increase accessibility should become standard parts of examination, goal setting, and intervention. This perspective article identifies barriers individuals with selected LLDs experience in accessing health care, including physical therapy. Strategies are suggested, including establishment of niche practices, physical accessibility improvement, and inclusion of more specific curriculum content in professional (entry-level) doctorate physical therapy schools.

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29 citations in Scopus

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Collaboration types
Domestic collaboration
Web of Science research areas
Orthopedics
Rehabilitation
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