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Journal article
The ethics of community-based research with people who use drugs: results of a scoping review
BMC medical ethics, v 17(1), 25
29 Apr 2016
PMID: 27129927
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background: Drug user networks and community-based organizations advocate for greater, meaningful involvement of people with lived experience of drug use in research, programs and services, and policy initiatives. Community-based approaches to research provide an opportunity to engage people who use drugs in all stages of the research process. Conducting community-based participatory research (CBPR) with people who use drugs has its own ethical challenges that are not necessarily acknowledged or supported by institutional ethics review boards. We conducted a scoping review to identify ethical issues in CBPR with people who use drugs that were documented in peer-reviewed and grey literature.
Methods: The search strategy focused on three areas; community-based research, ethical issues, and drug use. Searches of five academic databases were conducted in addition to a grey literature search, hand-searching, and consultation with organizational partners and key stakeholders. Peer reviewed literature and community reports published in English between 1985 and 2013 were included, with initial screening conducted by two reviewers.
Results: The search strategy produced a total of 874 references. Twenty-five references met the inclusion criteria and were included in our thematic analysis. Five areas were identified as important to the ethics of CBPR with people who use drugs: 1) participant compensation, 2) drug user perspectives on CBPR, 3) peer recruitment and representation in CBPR, 4) capacity building, and 5) participation and inclusion in CBPR.
Conclusions: We critically discuss implications of the emerging research in this field and provide suggestions for future research and practice.
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Details
- Title
- The ethics of community-based research with people who use drugs: results of a scoping review
- Creators
- Rusty Souleymanov - University of TorontoDario Kuzmanovic - University of TorontoZack Marshall - Mécanique et Engrenage Moderne (France)Ayden I. Scheim - Western UniversityMikiki Mikiki - Harm Reduction Peer Street Outreach Coordinator, Queen West Central Toronto Community Health Centre, Toronto, CanadaCatherine Worthington - University of VictoriaMargaret (Peggy) Millson - University of Toronto
- Publication Details
- BMC medical ethics, v 17(1), 25
- Publisher
- Springer Nature
- Number of pages
- 13
- Grant note
- SSHRC Doctoral Grant Vanier Canada Graduate Scholarship Trudeau Foundation Scholarship CIHR Social Research Centre in HIV Prevention; Canadian Institutes of Health Research (CIHR) CIHR Fellowship; Canadian Institutes of Health Research (CIHR) CIHR Strategic Training Initiative in Health Research (Universities Without Walls)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Epidemiology and Biostatistics
- Web of Science ID
- WOS:000375193100001
- Scopus ID
- 2-s2.0-84964655357
- Other Identifier
- 991020100082904721
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InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Ethics
- Medical Ethics
- Social Sciences, Biomedical