Journal article
The role of resilience in healthcare transitions among adolescent kidney transplant recipients
Pediatric transplantation, v 23(7), pp e13559-n/a
Nov 2019
PMID: 31441191
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Purpose
AYAs with KTs experience high rates of premature allograft loss during the HCT. There is a critical need to identify protective factors associated with stable HCT. Resilience—the ability to adapt and thrive in the setting of adversity—has known positive impact on health outcomes. This study explored the novel role of resilience constructs as protective factors in securing stable HCT among AYA with KT.
Methods
We conducted semi‐structured interviews of adolescents and young adults who transitioned from a single pediatric transplant center to multiple adult nephrology centers between 2010 and 2017. Interviews explored the role of key resilience constructs in participants' lives around the time of HCT. Participants were stratified into stable or unstable HCT groups based on biological markers of allograft function and clinical data from chart review. Content analyses of interview transcripts were reviewed and compared among HCT groups.
Results
Thirty‐two participants enrolled (17 stable; 15 unstable). Key resilience constructs more salient in the stable versus unstable HCT group were confidence in and connection to one's healthcare team. Reports of healthcare self‐management competencies were similar across both HCT groups.
Conclusions
Confidence in and connection to one's healthcare team appear to be linked with a stable HCT among AYA with KT. This suggests that interdependence, the ability to foster connections with and elicit support from healthcare providers, as opposed to complete independence or autonomy, which is often advised in the HCT process, is a critical component of resilience linked to stable HCT.
Metrics
Details
- Title
- The role of resilience in healthcare transitions among adolescent kidney transplant recipients
- Creators
- Sheila M. Quinn - Children's Hospital of PhiladelphiaHilda Fernandez - Columbia UniversityTaylor McCorkle - Children's Hospital of PhiladelphiaRachel Rogers - Data Management (Italy)Saarah Hussain - Hahnemann University HospitalCarol A. Ford - Children's Hospital of PhiladelphiaFrances K. Barg - University of PennsylvaniaKenneth R. Ginsburg - Children's Hospital of PhiladelphiaSandra Amaral - University of Pennsylvania
- Publication Details
- Pediatric transplantation, v 23(7), pp e13559-n/a
- Publisher
- Wiley
- Number of pages
- 10
- Grant note
- Children's Hospital of Philadelphia Center for Pediatric Clinical Effectiveness
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Epidemiology and Biostatistics
- Web of Science ID
- WOS:000483349700001
- Scopus ID
- 2-s2.0-85070952899
- Other Identifier
- 991019167826204721
UN Sustainable Development Goals (SDGs)
This publication has contributed to the advancement of the following goals:
InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Pediatrics
- Transplantation