Life Sciences & Biomedicine Rehabilitation Science & Technology
Purpose: To explore the feasibility of implementing the Tailored Activity Program with a cohort of people with frontotemporal dementia and their carers (dyads). Methods: The Tailored Activity Program is an occupational therapy based intervention that involves working collaboratively with family carers and prescribes personalized activities for behavioral management in people with dementia. Twenty dyads randomized into the study (Tailored Activity Program: n = 9; Control: n = 11) were assessed at baseline and 4-months. Qualitative analyzes evaluated feasibility and acceptability of the program for the frontotemporal dementia cohort, and quantitative analyzes (linear mixed model analyzes, Spearman's rho correlations) measured the impact of the program on the dyads. Results: The Tailored Activity Program was an acceptable intervention for the frontotemporal dementia dyads. Qualitative analyses identified five themes: "carer perceived benefits", "carer readiness to change", "strategies used by carer to engage person with dementia", "barriers to the Tailored Activity Program uptake/implementation", and "person with dementia engagement". Quantitative outcomes showed an overall reduction of behavioral symptoms (F-18.34 = 8.073, p = 0.011) and maintenance of functional performance in the person with dementia (F-18.03 = 0.375, p = 0.548). Conclusions: This study demonstrates the potential for using an activity-based intervention such as the Tailored Activity Program in frontotemporal dementia. Service providers should recognize that while people with frontotemporal dementia present with challenging issues, tailored therapies may support their function and reduce their behavioral symptoms.
The tailored activity program (TAP) to address behavioral disturbances in frontotemporal dementia: a feasibility and pilot study
Creators
Claire M. O'Connor - The University of Sydney
Lindy Clemson - The University of Sydney
Henry Brodaty - UNSW Sydney
Lee-Fay Low - The University of Sydney
Yun-Hee Jeon - The University of Sydney
Laura N. Gitlin - Johns Hopkins University
Olivier Piguet - Brain & Mind Ctr, Sydney, NSW, Australia
Eneida Mioshi - University of East Anglia
Publication Details
Disability and rehabilitation, v 41(3)
Publisher
Taylor & Francis
Number of pages
12
Grant note
CE11000102 / Australian Research Council (ARC) Centre of Excellence in Cognition and its Disorders Memory Program; Australian Research Council
APP1103258 / NHMRC Senior Research Fellowship; National Health and Medical Research Council (NHMRC) of Australia
APP1037746 / National Health and Medical Research Council (NHMRC); National Health and Medical Research Council (NHMRC) of Australia
Alzheimer's Australia Dementia Research Foundation PhD Scholarship
AS-SF-14-003 / Alzheimer's Society UK
Resource Type
Journal article
Language
English
Academic Unit
College of Nursing and Health Professions; Drexel University
Web of Science ID
WOS:000458548800006
Scopus ID
2-s2.0-85031493964
Other Identifier
991020111984604721
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