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Tumor Specimen Biobanks: Data Gaps for Analyzing Health Inequities—the Case of Breast Cancer
Journal article   Open access   Peer reviewed

Tumor Specimen Biobanks: Data Gaps for Analyzing Health Inequities—the Case of Breast Cancer

Nancy Krieger and Jaquelyn L Jahn
JNCI cancer spectrum, v 2(1), pp pky011-pky011
01 Jan 2018
DOI: https://doi.org/10.1093/jncics/pky011
PMID: 31360842
Featured in Collection :   UN Sustainable Development Goals @ Drexel
url
https://doi.org/10.1093/jncics/pky011View
Published, Version of Record (VoR) Open

Abstract

Brief Communication
Biobanks are increasingly recognized to be vital for analyzing tumor properties, treatment options, and clinical prognosis, yet few data exist on whether they are equipped to enable research on cancer inequities, that is, unfair and unnecessary social group differences in health. We conducted a systematic search of global biobanks, identified 46 that have breast tumor tissue and share data externally with academic researchers, and e-mailed and called to obtain data on the sociodemographic, socioeconomic, and geospatial data included, plus time span encompassed. Among the 32 biobank respondents, 91% housed specimens solely from the Global North, only 31% obtained socioeconomic data, 63% included racial/ethnic data (of which 55% lacked socioeconomic data), 44% included limited geographic data, and 55% had specimens dating back at most to 2000. To enable research to address cancer inequities, including trends over time, biobanks will need to address the data gaps documented by our study.

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5 Record Views
2 citations in Web of Science
3 citations in Scopus

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UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#5 Gender Equality
#3 Good Health and Well-Being

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Web of Science research areas
Oncology
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