Journal article
Turning to Peers: Integrating Understanding of the Self, the Condition, and Others' Experiences in Making Sense of Complex Chronic Conditions
Computer supported cooperative work, v 25(6), pp 477-501
2016
PMID: 32355411
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
People are increasingly involved in the self-management of their own health, including chronic conditions. With technology advances, the choice of self-management practices, tools, and technologies has never been greater. The studies reported here investigated the information seeking practices of two different chronic health populations in their quest to manage their health conditions. Migraine and diabetes patients and clinicians in the UK and the US were interviewed about their information needs and practices, and representative online communities were explored to inform a qualitative study. We found that people with either chronic condition require personally relevant information and use a broad and varied set of practices and tools to make sense of their specific symptoms, triggers, and treatments. Participants sought out different types of information from varied sources about themselves, their medical condition, and their peers' experiences of the same chronic condition. People with diabetes and migraine expended great effort to validate their personal experiences of their condition and determine whether these experiences were 'normal'. Based on these findings, we discuss the need for future personal health technologies that support people in engaging in meaningful and personalised data collection, information seeking, and information sharing with peers in flexible ways that enable them to better understand their own condition.
Metrics
Details
- Title
- Turning to Peers: Integrating Understanding of the Self, the Condition, and Others' Experiences in Making Sense of Complex Chronic Conditions
- Creators
- Aisling Ann O'Kane - UCL, London, EnglandSun Young Park - University of Michigan–Ann ArborHelena Mentis - University of Maryland, Baltimore CountyAnn Blandford - University College LondonYunan Chen - University of California, Irvine
- Publication Details
- Computer supported cooperative work, v 25(6), pp 477-501
- Publisher
- Springer Nature
- Number of pages
- 25
- Grant note
- Ubi-Health EC Marie Curie Network EP/G059063/1 / EPSRC; UK Research & Innovation (UKRI); Engineering & Physical Sciences Research Council (EPSRC) University of California, Irvine; University of California System EPSRC EP/G059063/1 / CHI + MED project University of Maryland, Baltimore County Microsoft Research Cambridge; Microsoft
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Information Science (Informatics)
- Web of Science ID
- WOS:000389609400002
- Scopus ID
- 2-s2.0-84982272566
- Other Identifier
- 991021916915304721
UN Sustainable Development Goals (SDGs)
This publication has contributed to the advancement of the following goals:
InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Computer Science, Interdisciplinary Applications