Journal article
Understanding Caregiving and Caregivers: Supporting Children and Youth With Special Health Care Needs at Home
Academic pediatrics, v 22(2), pp S14-S21
Mar 2022
PMID: 35248243
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Caregiving encompasses the nurturing, tasks, resources, and services that meet the day-to-day needs of children and youth with special health care needs (CYSHCN) at home. Many gaps exist in the strategies currently offered by the health care system to meet the caregiving needs of CYSHCN. The work of family caregivers of CYSHCN is known to be extensive, but it is so poorly understood that it has been described as “invisible”. This invisibility leads to poor communication and gaps in understanding between professional health care providers and family caregivers. To address these gaps, health care researchers must work with family caregivers to incorporate their expertise on caregiving and create meaningful and sustainable research partnerships. A growing body of research is attempting to remedy the problem of caregiving invisibility and lay better foundations for successful integration between health care settings, family caregiving, professional caregiving, and community supports for families of CYSHCN. We identify high-priority gaps in CYSHCN caregiving research and propose research questions that are designed to accelerate growth in evidence-based understanding of the work of family caregivers of CYSHCN and how best to support them.
Metrics
Details
- Title
- Understanding Caregiving and Caregivers: Supporting Children and Youth With Special Health Care Needs at Home
- Creators
- Clarissa G. Hoover - Family Voices (CG Hoover), Lexington, MassRyan J. Coller - University of Wisconsin–MadisonAmy Houtrow - University of PittsburghDebbi Harris - Family Voices of Minnesota (D Harris), Stillwater, MinnRishi Agrawal - Division of Hospital-Based Medicine (R Agrawal), Northwestern University Feinberg School of Medicine, Chicago, IllRenee Turchi - Drexel University
- Publication Details
- Academic pediatrics, v 22(2), pp S14-S21
- Publisher
- Elsevier
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Community Health and Prevention
- Web of Science ID
- WOS:000765994400003
- Scopus ID
- 2-s2.0-85124623382
- Other Identifier
- 991019167887804721
UN Sustainable Development Goals (SDGs)
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Pediatrics