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Journal article
"We Would Still Find Things to Talk About": Assessment of Mentor Perspectives in a Systemic Lupus Erythematosus Intervention to Improve Disease Self-Management, Empowering SLE Patients
Journal of the National Medical Association, v 110(2), pp 182-189
01 Apr 2018
PMID: 29580453
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background: Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disorder with significant disparate impact on African American women. The current study sought to highlight how the Peer Approaches to Lupus Self-management (PALS) intervention worked bi-directionally wherein both women with SLE leading the disease self-management program (mentors), and those participants who served as mentees, were empowered toward greater disease self-efficacy.
Methods: Data was captured for this study in two formats from the seven mentors participating in the pilot study: 1) mentor logs and 2) mentor interviews with the principle investigator. This information was then analyzed for themes relating to their experience within the study.
Results: We found that empowerment was facilitated by mentors taking their mentorship responsibilities seriously and seeking several avenues for collaboratively developing success with their mentees. Mentors reported that although challenges arose, their desire for success resulted in multiple approaches to be flexible and responsive to the needs of their mentees. Additionally, reciprocity was found to be a vital element of the program.
Conclusions: Key thematic areas supported our ability to demonstrate the usefulness of a peer mentoring program for SLE disease self-management on evoking empowerment through reciprocal relationships among mentors and mentees within our study population. Furthermore the feedback from PALS participants yielded very rich and contextual information that can be used as a thematic guide for developing and refining evidence-based interventions that seek to incorporate empowerment into disease self-management efforts for women suffering from SLE.
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Details
- Title
- "We Would Still Find Things to Talk About": Assessment of Mentor Perspectives in a Systemic Lupus Erythematosus Intervention to Improve Disease Self-Management, Empowering SLE Patients
- Creators
- Minnjuan Flournoy-Floyd - Subst Abuse & Mental Hlth Serv Adm, Ctr Subst Abuse Treatment, 5600 Fishers Lane, Rockville, MD 20857 USAKasim Ortiz - University of New MexicoLeonard Egede - Medical College of WisconsinJim C. Oates - Ralph H. Johnson VA Medical CenterTrevor D. Faith - Medical University of South CarolinaEdith M. Williams - Medical University of South Carolina
- Publication Details
- Journal of the National Medical Association, v 110(2), pp 182-189
- Publisher
- Natl Med Assoc
- Number of pages
- 8
- Grant note
- UL1 TR001450 / NCATS NIH HHS; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Center for Advancing Translational Sciences (NCATS) UL1TR001450 / NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Center for Advancing Translational Sciences (NCATS) P30 AR072582; K01 AR060026; P60 AR062755 / NIAMS NIH HHS; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Arthritis & Musculoskeletal & Skin Diseases (NIAMS) P60AR062755 / NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN DISEASES; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Arthritis & Musculoskeletal & Skin Diseases (NIAMS)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Health Management and Policy
- Web of Science ID
- WOS:000429700900013
- Scopus ID
- 2-s2.0-85019751722
- Other Identifier
- 991021899213204721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Rheumatology