Files and links (1)
Accepted (AM)Open Access (License Unspecified), Open
Journal article
A Systematic Review of Passing as Non-autistic in Autism Spectrum Disorder
Clinical child and family psychology review, v 24(4), pp 783-812
01 Dec 2021
PMID: 34505231
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
While long described in anecdotal accounts of the lived experiences of autistic individuals, the phenomenon of behaving in ways that appear inconsistent with the presence of autism (or passing as non-autistic; PAN) has recently seen a dramatic increase in scrutiny in the published scientific literature. Increased research attention has coincided with a proliferation of methods, definitions, measures, and population assumptions associated with PAN. To date, however, no review has sought to systematically identify and synthesize the literature on PAN. This systematic review reflects the state of the PAN literature as of May 2020. Ninety articles were screened, 66 were identified for evaluation, and 46 met inclusion criteria and were reliably coded for study characteristics and participant characteristics. Results reveal that the PAN literature includes a relatively even mix of qualitative, quantitative, and mixed-method studies, and that a variety of terms are used for PAN (with masking and camouflage being the most frequent). Sample sizes varied widely (from one to 832 participants), with 63.06% of participants being categorized as autistic. Nearly all studies reported methods for confirming autism diagnoses, with community and clinical diagnoses being most common. The majority of studies reported participant gender, with slightly more females included than males on average, but fewer than half of all studies compared PAN across genders. Nearly all studies reported participant age, demonstrating a wide range of 2 to 79 years, with a mean age of 23.85. Conversely, only 23.91% of studies provided participant race or ethnicity data. Nearly all studies formally or informally excluded participants with intellectual disability. Finally, measures of internalizing symptoms, which are often thought to be linked to PAN, were reported in only 17.4% of studies. Implications for gaps in understanding of PAN and future directions for the field are discussed.
Metrics
Details
- Title
- A Systematic Review of Passing as Non-autistic in Autism Spectrum Disorder
- Creators
- Erin J. Libsack - Stony Brook UniversityElliot Gavin Keenan - University of California, Los AngelesCaroline E. Freden - Stony Brook UniversityJulianne Mirmina - Stony Brook UniversityNathaniel Iskhakov - Stony Brook UniversityDarsiya Krishnathasan - Stony Brook UniversityMatthew D. Lerner - Stony Brook University
- Publication Details
- Clinical child and family psychology review, v 24(4), pp 783-812
- Publisher
- Springer Nature
- Number of pages
- 30
- Grant note
- R01MH110585 / National Institute of Mental Health (NIMH); United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Mental Health (NIMH)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute
- Web of Science ID
- WOS:000694618700002
- Scopus ID
- 2-s2.0-85114606933
- Other Identifier
- 991021861827804721
UN Sustainable Development Goals (SDGs)
This publication has contributed to the advancement of the following goals:
InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Psychology, Clinical