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Identifying Health Literacy and Health System Navigation Needs among Rural Cancer Patients: Findings from the Rural Oncology Literacy Enhancement Study (ROLES)
Journal article   Open access   Peer reviewed

Identifying Health Literacy and Health System Navigation Needs among Rural Cancer Patients: Findings from the Rural Oncology Literacy Enhancement Study (ROLES)

Ana P. Martinez-Donate, Julie Halverson, Norma-Jean Simon, Jeanne Schaaf Strickland, Amy Trentham-Dietz, Paul D. Smith, Rebecca Linskens and Xinyi Wang
Journal of cancer education, v 28(3), pp 573-581
01 Sep 2013
PMID: 23813542
url
https://europepmc.org/articles/pmc3755018View

Abstract

Education & Educational Research Education, Scientific Disciplines Life Sciences & Biomedicine Oncology Public, Environmental & Occupational Health Science & Technology Social Sciences
Rural residence is associated with disparities in cancer-related outcomes. Guided by the Chronic Care Model (CCM), the Rural Oncology Literacy Enhancement Study (ROLES) assessed health literacy and patient navigation needs among rural cancer patients. A mixed methods (qualitative and quantitative) approach was used, including: in-depth interviews, health literacy assessments, and phone surveys with cancer patients (N = 53) from 5 oncology clinics in rural Wisconsin; focus groups and self-administered surveys with staff (N = 41) in these clinics. Within four dimensions of the CCM (community resources, self-management support, delivery system design, and decision support), this study uncovered multiple unmet navigation needs, health literacy limitations, and barriers to quality cancer care. System-level implementation of patient navigation and health literacy best practices could contribute to improved cancer care and patient outcomes among rural populations. Further research identifying effective interventions that reduce cancer disparities among rural cancer patients is necessary.

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UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#3 Good Health and Well-Being
#5 Gender Equality

Source: SDGs in the Output

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Web of Science research areas
Education, Scientific Disciplines
Oncology
Public, Environmental & Occupational Health
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